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I know a more robust system of advocates who were truly patient advocates would make a tremendous difference. The patient advocate who greets you or your loved one in the hospital to discuss your care is not working for you. She is working for the hospital to improve the profitability of the hospital and move you or your loved one to a secondary care facility as soon as possible to open up that bed for someone else while providing income to the other center which is part of the same organization.
Who in the system takes responsibility for making sure that you or your loved one is receiving optimal care? Not the doctor you have been seeing for years. He may not even have admitting privileges to the hospital he sends you to. You are at the mercy of the system and the basic sense of decency of their employees.
Arm chair detective is a genre of crime fiction where retired detectives solve crimes utilizing skills that are not being utilized by the system but (in fiction) manage to save the day.
I have become an unofficial (not entirely arm chair) patient advocate for friends and acquaintances who need help navigating our broken medical care system. I don't have a structured way of choosing who I try to help. Because I am a retired physician, medical matters often come up in conversation with friends and even casual acquaintances. I ask a few questions to see what the situation is and what the person understands about that situation. If I think they may be having trouble understanding the situation or are facing inappropriate obstacles in their path, I offer to get involved. If they are interested, I ask for copies of all of their imaging studies and pertinent pathology reports and such. I review everything with them and reassess the medical situation as I learn more from them. Ultimately I have found that going with a patient to his or her doctor appointment has been universally productive. Trying to speak with another doctor by phone, unfortunately, is not possible. So I help the patient by being there and asking each doctor to explain what the plan is.
I have decided to take this need more seriously. I would like to develop an informal network of arm chair physicians who still have contacts within the system to offer assistance to each other in helping friends and family navigate medical issues. I already have a few fellow physician friends who share my concerns, and they have been helpful in brain-storming the problems that have arisen so far. I also share the confidence of a few local hospital nurses who are working within the system. They see the problem as well as anyone.
Any advice or help would be appreciated.
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Discussion (24)
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I do this for a living. I'm a concierge doc.
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So the system is working for you. I also go to a concierge doctor and the system is working for me. But that is not our nationalized conglomerate clustered system of healthcare. Do you ever try to help friends or acquaintances who are not paying you a monthly fee with their medical issues?
Let me know how that works.
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I'm facing some upcoming surgeries. I sure would like to have an arm chair advocate.
I have a Medicare Advantage package from my retirement system. They changed from United to another provider this year. While we were with United, we were bombarded with offers of a "free home visit" from a nurse who would help us in terms of Medicare coverage. A little research on this revealed that the real intent of the visit is to allow them to re-classify us into higher risk categories so that our provider can get more from Medicare. Our new provider has not done this yet.
We also have long term care insurance (which, by the way, is jacking up the premium 56% over 3 years) and they have provided me an ally who wants to give me free stuff. The free stuff we're getting is a shower chair and new shower nozzles/hoses and grab bars for our shower. Clearly they would like us to push out any need for their coverage farther into the future. But in this case, the insurer and I are aligned. We both want me to not need to start using the insurance sooner.
Our Social Security benefits rose, I think, 2% this year. My LTC bill has risen 17% so far and more to come, my car insurance has risen a lot more, and my home insurance has also been jacked up. Grocery and gas are way up. It takes a real genius to find a bundle of prices that only rose 2% this year.
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Government Is How We Steal From Each Other™
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I love this.
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