Paul A. Rahe · August 4, 2012 at 3:15am

There is a line in Godfather III that keeps running through my head. Michael Corleone is speaking with his sister Connie, and he says, “Just when I thought I was out, they pull me back in.” That is, alas, for me the story of late July and early August.

As you may remember, on 25 June, I went under the knife to have my prostate taken out at the National Institutes of Health (NIH) in Bethesda, Maryland. That operation went smoothly, and there were no immediate complications – no infection, in particular. The initial post-operative period was a bit grim, but I made steady progress and went home on 3 July. Soon thereafter, I learned that the cancer had not spread beyond the prostate and that I appeared to be cancer-free. All that was required for me to be fully back on my feet was caution and patience. So I believed.

But I was wrong. In the afternoon, when I walked or sat – especially, when I leaned or twisted to the left – I experienced pain. Low-level pain, mind you. For a long time, I assumed that this was normal post-operative pain associated with the seven incisions made for the robots used in my operation.

On 22 July, however, it became clear that something was seriously amiss. I popped out our front door, down the stairs, and tried to slide into the driver’s seat in my 1991 Toyota Corolla. All went well until I moved to lift my left leg over the sill and into the car. Then, I felt excruciating pain in my lower left back. Getting out was easier; getting back in was once again harrowing.

The next morning I spoke with the urology fellow on call at NIH and reported my experience. He doubted that it had to do with the operation. It seemed to him, as it seemed to me, to be an extreme case of tendonitis (which, in a sense, it was). That morning I was pain-free; that afternoon I once again slipped into the driver’s seat of the car, and the pain was once again excruciating. So I called again to report my experience and eventually spoke to a senior physician who urged me to jump on a plane, which I did on Wednesday, 24 July. The rest is a bit of a blur. I had test after test, and the ultrasound showed and the Cat-Scan confirmed that a considerable body of fluid was concentrated in the cavity between my left kidney and my lower back, pressing on the muscles there.

On the Friday, the 27th, Intervention Radiology gave me a bit of lidocaine (a cousin of novocaine). I refused the sedative offered, and the gentlemen in charge expertly snaked a catheter through my skin and down along a natural channel into the cavity. I felt pressure but no pain. That day they took out a liter of what turned out to be lymphomatic fluid. Put simply, after the prostatectomy, the lymph nodes not taken out were bleeding fluids, and instead of finding its way to the diverse collection of liquids swishing around about the intestines it collected in this particular cavity. On subsequent days, more fluid came out. Ordinarily, in these cases, it eventually stops, and the cavity dries up. In my case, the out-take from the catheter in my side declined, then proceeded at a steady, if moderate, pace.

In the meantime, something else presented itself. I came down with pneumonia. When that happens in a hospital, people get very, very nervous. If it is “hospital” pneumonia, as opposed to “community” pneumonia, it can be resistant to antibiotics. I was put on an IV and fed a heavy dose of Zosyn, Arithromyecin, and an antibiotic whose name I never heard – while Infectious Diseases here at NIH studied my sputum and tried to grow something from it.

In the meantime, it became hard to find the veins on my arms and hands. Usually, I am an easy stick, and usually I feel little pain. Not this week. Moreover, if the IV feed was temporarily stopped, the vein in which the needle sat tended to collapse. One evening two nurses tried to draw blood and failed; another evening, three did so. I grew impatient (which is not what a patient is supposed to do). The pneumonia knocked me sideways. Lots of coughing, high fever (102/3), and chills, and the coughing rendered endemic the incontinence incident to prostatectomy. To put it bluntly, I could hold my water if I did not cough. But this week I did little but cough. I used to laugh at the thought of old folks wearing diapers. Now, at least for the time being, I am one of them.

In time the, antibiotics brought down my white blood counts from 15 to 6 and my temperature to something like normal. In time, the sputum culture indicated that my pneumonia was a run-of-the-mill sort, and I was taken off the IV and given amoxycylin. And today, liberated from the IV,  I managed to shower for the first time in five days (a consummation devoutly to be wished). But now I face another dilemma.

The fluid in the cavity is not drying up. Something more radical needs to be done or I will be back in the same pickle in which I started. The cavity in which the fluid collects must either be closed so that the fluid cannot enter. Or it must be opened where it is now closed – so that the fluid that enters it gets dumped in the perineum and joins the waters about my intestines. The former can be attempted by running alcohol down the catheter into the cavity, but on average it takes twenty to thirty days of repeated experiments, and it cannot be done in Hillsdale where I live. The latter is quick and easy but requires laproscopic surgery, which involves anesthesia and brings with it all of the ordinary risks of surgery.

We seem to be about to try the former. My suspicion – horribile dictu! – is that the latter will soon be necessary. Having had a prostatectomy can be a bit like being married. It is not a state to be entered into lightly -- for, if things go bad, just when you think you are out, they pull you back in.

Comments:


dogsbody
Joined
Sep '10
dogsbody

Goodness, how awful.  I thought you were on the way out of the dark woods, but the trail seems to be leading back into them.  I will keep you in my evening prayers.


Joined
Jun '11
michael kelley

One moment, one day at a time.....get better.

Your work is not yet done.  You will come through this and you will have many years ahead of you.

Here, in my humble neck of the woods, Rosaries will be offered for your recovery.

And, also, a prayer to Achilles, another mortal of great achievement.

Red Feline
Joined
Apr '12
Red Feline

How disappointing, to say the least! Sincerest good wishes that the procedure works!  

M1919A4
Joined
Nov '10
M1919A4

I wish you the very best, encourage you to take the surgical route (I cannot stand the waiting myself), and will resume naming you in my prayers.

Mel Foil
Joined
Jun '10
Mel Foil
Image169

[Bringing out the big gun.]

St. Peregrine Laziosi
"An ideal priest, he had a reputation for fervent preaching and being a good confessor. When he was afflicted with cancer of the foot and amputation had been decided upon, he spent the night before the operation, in prayer. The following morning he was completely cured. This miracle caused his reputation to become widespread. He died in 1345 at the age of eighty-five, and he was canonized by Pope Benedict XIII in 1726. St. Peregrine, like St. Paul, was in open defiance of the Church as a youth. Once given the grace of conversion he became one of the great saints of his time. His great fervor and qualities as a confessor brought many back to the true Faith. Afflicted with cancer, Peregrine turned to God and was richly rewarded for his Faith, enabling him over many years to lead others to the truth. He is the patron of cancer patients."

-

St. Peregrine, pray for Paul and for all who invoke your aid.

Astonishing
Joined
Nov '11
Astonishing

Egads! What a horrible medical adventure. I can commiserate. Mine has been longer, yours more instense, but they're similar in a too interesting way. I also acquired a post-operative fluid collection, specifically a hepatic subcapsurlar fluid collection, probably originally a biloma, but then drained and succeeded, supposedly, by a less antagonistic "simple seroma." My hepatic subcapsular fluid collection has stuck around so long that I have given him a pet name, "Cappy" and been compelled to appoint him as my official "sidekick," because he kicks me in the side, constantly.

They say experience is the best teacher, but also the most unforgiving, so thank you for describing yours so that others can learn from it, painlessly.

If someone had told you in advance that this is what you would have to go through to get well, you might have said then, "No thanks, I shan't do that," but now that you've already been through so much misery, you have probably discovered your body has an unexpected resiliance, and seeing as how you have already been through that misery, the thing to do now is to make it pay off by getting well, darn it!

tabula rasa
Joined
Jun '10
tabula rasa

After hearing your story, I feel almost guilty about how well my surgery (the same surgery you had) went.  My only bump in the road (bump overstates it, but I have no word for something smaller than a full-fledged bump) was an infection in one of the small incisions, which was quickly resolved by the right antibiotic.

I pray they'll be able to solve the problem soon.  Sounds like surgery is the best option.

I can testify that when it finally gets resolved you'll feel great.  All the best.

Edited on August 4, 2012 at 5:10am
Edward Smith
Joined
May '12
Edward Smith

There's a Prayer Line I can put you on.

Past that, I have nothing.

Nick Stuart
Joined
May '10
Nick Stuart

Back in the soup? Sounds like the soup's in your back (little attempt at humor there to take your mind off).

Praying for your speedy recovery.

Benjamin Glaser
Joined
Jul '12
Benjamin Glaser

Will be praying.

Susan in Seattle
Joined
Apr '11
Susan in Seattle

Holding you and yours close.

Percival
Joined
Mar '11
Percival

My prayers are added to all the rest.

Mark Lewis
Joined
Jun '10
Mark Lewis

May the dryness of your wit be a desiccant that sucks the water/wind out of your opponents sails (in this case bodily fluids, granted) as it always does, sooner or later, Mr. Rahe!

Gus Marvinson
Joined
Mar '11
Gus Marvinson

Sending prayers to Almighty God on your behalf, Dr. Rahe.

Edited on August 4, 2012 at 8:23am

Joined
Aug '10
Ansonia

Dr Rahe, Please do everything you're supposed to do to take care of yourself. We're praying for you at my house.

Edited on August 4, 2012 at 6:00am

Joined
Jan '12
Barbara Kidder

"If you're going to go through hell, keep going!"  

Winston Churchill

Erik Larsen
Joined
Jan '11
Erik Larsen

If you ever want someone to review your original pathology, I don't mind and can provide you with a pretty good objective and subjective discourse. Age is a funny thing, we aren't twenty anymore. I'm reminded of my grandma who said we're all just children in old people's bodies. She said she looked in the mirror wondering who that old woman was

Nanda Panjandrum
Joined
Nov '11
Nanda Panjandrum

Praying for you and yours!

Peter Gøthgen
Joined
Feb '11
Peter Gøthgen

If it helps, I ran your story by my wife the anesthesiologist.  She responded at various intervals with "mm-hm", but never sounded worried.

Prayers for you, all the same.

Bill Walsh

Geçmiş olsun, Professor (as Claire’s neighbors would say—“may it be past”). Will submit request to the Head Office on your behalf. Hang in there.


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